Monday, December 23, 2013
From the 'Special Needs Jungle' site, I received notice that the charity, Cerebra, is standing behind a seat making it easier for families to go out with their children who require more care, who have some disabilities. Firefly Go To Seat' is a support seat created in association with James Leckey Design and Cerebra. According to the site, it offers postural support and stability; it is washable and versatile and can be fitted to any dining room chair, supermarket seat or bike. Another great thing is called the 'Magnificent 7': each Go T0 Seat will give 7% of the sale to Cerebra. To see a video, click here.
Wednesday, December 18, 2013
Will came home with an ornament that was made in class for a project that I had no idea they were doing. I am not sure of all the designs but this is what he came home with, one he made to keep. Waterfire. His class made about 200 to help. Providence Rescue Mission & their pledge to support the homeless & needy of Providence. To decorate the many trees in Waterplace Park, Waterfire asked local schools, students, classrooms and after school
Tuesday, December 17, 2013
I usually post about adults taking care of special needs children. This post that was on LifeNews.com shows a hearing 5 year old sharing the Christmas songs from her school pageant with her deaf parents. Claire Koch has had American video. I'm sure you'll agree she is having a great time entertaining her parents.
Monday, December 9, 2013
I found a wonderful video made by the Swiss charity, Pro Infirmis, a charity for this disabled. "Because Who Is Perfect? Get Closer" documents how mannequins were modeled specifically to several people's physical disability and handicap. It shows the process of how it was done and the great reactions of these people seeing their Daily Mail from the UK ran a story on how these mannequins were put on display in a Zurich store window to “raise awareness of people with disabilities, specifically in the image-obsessed worlds of fashion and retail.” Time magazines article states that this was done in honor of International Day of Persons with Disabilities on December 3rd.here.
Friday, December 6, 2013
Apostrophe Magazine online had a post regarding a special cheerleading team in Georgia. There was a pep rally the night before the boys football game and the girls from the Sharon Springs Cheerleading Association were on the field. New to the group was a team called the 'Phenominal Falcons' made up of special needs cheerleaders.here.
Monday, December 2, 2013
I am not a legal professional and laws may vary from state to state. Please speak with a professional in your area for the rules and regulations that would apply. The following is just general information that I have come across which may or may not apply to your family situation. Plan of Massachusetts and RI" (which is the group she suggested had the best plan for us) comes the definition: There are two different types of pooled Special Needs Trusts based on who “owns” the money that funds the trust. If the money belongs to the trust beneficiary, it will go into the MARC Special Needs Pooled Trust. The MARC Special Needs Pooled Trust is funded with assets belonging to the disabled individual, often obtained through an inheritance, personal injury settlement, or personal savings. If the money belongs to someone other than the trust beneficiary, it will be put into the PLAN of Massachusetts and Rhode Island Third Party Special Needs Pooled Trust. The PLAN Third-Party Special Needs Pooled Trust is funded with assets belonging to families or other third parties to benefit a person with a disability. The third-party trust can be funded immediately or in the future through an estate or life insurance. A trust with a group of people as trustee was the best plan since that way, our other sons (especially if they are not in the area) do not have to worry about paying Willie's bills that are not covered by his services. The group overseeing this trust would also take care of any paperwork, tax filings, etc., of course for a fee. What has stopped us at the moment, is that while we can set this up and not fund it, once it is funded then the fees start. Taking a look as to who may be putting money into this in the future, we fear - in our situation - that the fees would eat up the money in a short period of time. So right now, we are holding off doing this. Another website, "M & L Special Needs Planning" out of the Washington, DC area, offers some areas of concern that you may want to investigate for yourself, talking to a local professional. At my meeting, we did not address # 3. 1 - A Comprehensive Special Needs Financial Life Plan 2 - Government Benefit Counseling 3 - Insurance Needs Analysis Planning This website also provides some interesting statistics: Reasons for Special Needs Financial Life Plans -- Nearly 54 Million Americans cope with special needs and the rising associated expenses, according to the National Organization on Disability. Nearly one-fifth of all Americans—more than 54 million men, women and children— have a physical, sensory or intellectual disability, according to the National Organization on Disability. More than 41 million Americans, or almost 15% of the population age 5 and older, have some type of disability; according to 2007 Census survey data. Some 6.2% of children ages 5 to 15, or 2.8 million kids, have disabilities, the Census Bureau found. The U.S. Census Bureau says about 20% of Americans between the ages of 16 and 64 suffer some form of physical, mental or emotional impairment. Many of them are outliving their parents thanks to improved care medical technology. Over 75 percent of special needs adults are without employment (Grassi, S.G. Special Planning is Needed for Families with a Special-Needs Child. Journal of Practical Estate Planning, 39-51) Households containing at least one family member with a mental disability are also marked by the highest poverty rate, 32 percent, within the U.S. (Erickson, W., & Lee, C. Disability Status Report: United States.) The need is there to plan, this is something we can all agree on, but what type of plan is best will be best determined by a discussion with a professional who is familiar with looking long term and who knows the laws. As the attorney I spoke to said, if we wanted to speak to someone else - no problem; just make sure that person knows the rules and regulations and most of all the language that is used to set the trust up. It is specialized, especially since you do not want it interfering with any income and/or services that are being provided to your son or daughter. If you do set a trust up, anyone wanting to give money to the trust does exactly that -- writes the check, leaves an inheritance or life insurance money TO THE TRUST, not to the person. Even birthday money has the trust's name on the check. This trust plan is a good idea - make sure it is a good idea for your family.
Friday, November 29, 2013
home based therapeutic services, HBTS). These are medically, necessary, & intensive services that can be provided whether it is just more convenient or necessary to be in the home. Our state department of human services states that these services: 1 - maximizes the child's ability to live at home; 2 - the child can participate as a valued member of their family & community; 3 - improve the child's ability to function in the least restrictive level of care; 4 - improve the child's ability to transition to adulthood. Eligibility is based on: 1 - child being Medicaid eligible; 2 - child up to 21 years of age; 3 - living with their family, legal guardian, or foster care; 4 - child with a chronic & moderate to severe cognitive, physical, developmental and/or psychiatric conditions with a DSM-IV or ICD-9 diagnosis within the last 2 years; 5 - child who has not benefited from other intensive outpatient services; 6 - child who may be at risk for hospitalization or out of home placement without HBTS; 7 - child who is enrolled in a CEDARR Family Center and have a Family Care Plan. To continue on with this program, it is not only the child and agency who have to participate. The family as well has a role & responsibility: 1 - family must ensure that the care setting is safe; 2 - families work with the HBTS agency to develop the treatment plan. The family must be present & participate in a majority of the time set in the treatment plan; they also must be present when siblings in the home need to be supervised; must have a parent goal on the plan; keep track of child's behavior during non-HBTS time. It is the role & responsibility of the HBTS worker to: implement the Treatment Plan by providing one-to-one therapeutic services, reinforce the identified goals on the IEP or IFSP, keep progress notes on the Treatment Plan goals, provide information to families & clinical supervisor on goals, attend weekly supervision sessions with clinical supervisor, attend on-going training sessions held by HBTS agency. Please talk with your local social service agency, teacher, or doctor to see if these services can be of help. These rules & regulations may change by location, so make sure you have all facts to see if you qualify. Looking for a PASS?
Wednesday, November 27, 2013
On the 'Today News' website there was a story about a young man, Chris Tuttle who is 28 and lives is upstate New York. He has Asperger's Syndrome.Facebook for him, since he loves social media. She said she was only expecting a handful of people to respond. At press time there were over 100,000 likes and 15,000 comments coming as far away as Australia and South Africa besides his friends and store customers. The effect was so positive, Chris felt able to go to work the next day. He has received such an outpouring of support - people have waited in his line (even if others are clear) just to shake his hand or give him a hug. “It makes me feel blessed and loved and cared for,’’ Chris said. “They made me feel a lot better afterwards. It was overwhelming, and it was really supportive for all those people to be in my line, shaking my hand, hugging me and giving me nice cards.” “The community has come together and made him feel good about himself,’’ Jamie said. Even though the woman who yelled at Chris has not come forward. Jamie is hoping that people will think about life from the other person's eyes before getting angry at someone like Chris.
Tuesday, November 26, 2013
'Tis the season for long lines - at the stores, restaurants, road trips, maybe even just a visit to the doctor. Even with children who have no special needs, we bring along a 'survival kit'. In the case of 'About.com' it is called a 'bag of tricks'. As we all know, children with special needs have less of an attention span, have a hard time transitioning, finding ways to amuse themselves, and may have trouble avoiding meltdowns with all the aforementioned going on. Dots" game: connecting dots on a paper to make squares • A is for ..., B is for ... • Hide something in fist -- guess which hand? • Play with child's hair We adults get antsy with all the standing and waiting around so we can imagine how hard it is for our children. For those who can speak, these ideas may even open up a communication line with your child, learning about school and friends, hopes and dreams. Maybe even questions about what they think about, what do they think they would like to do after graduation, what kind of food would they like to learn about or grow. For those who are non-verbal, bring paper or their communication device and talk about what they like -- food, drinks, TV shows, music. Maybe download music on an iPad or iPod. Depending on where you are, you can get silly and dance!! Windowshop if you can get away. Also if you can, plan trips when you feel the wait lines will be the shortest. We are all in this together and if anyone watching is not happy with the behavior, OH WELL!!! Santa is watching for good behavior!!
Friday, November 15, 2013
There was a wonderful story on Life News about a middle school football team in Olivet, Michigan that secretly schemed to let a special needs player score a touchdown. Teammates of Keith Orr plotted to let him score during one of their games. The coach was not even in on it. Neither was Keith's parents. It took weeks of planning but finally during one game, the ball was video - you can see even one of his teammates has changed his attitude and outlook toward Keith. He says: 'it was to make someone's day, someone's week, to make him happy'. Keith has learning disabilities, has problems with boundaries but is loveable, hugging everyone he knows. His teammates wanted to prove he was part of the team and meant a lot to them. As wide receiver, Justice Miller, said “He’s never been cool or popular. He went from being a nobody to making everyone’s day”.
Monday, November 11, 2013
Feel Good Stories" and "Dolphin Therapy". Your point?? Well, I came across a few other animals helping folks and thought I might share the information. Of course there is the loyal dog, coming in all shapes and sizes, man's best friend, ready to help at the call. How about a
Thursday, November 7, 2013
(picture from About.com site) I saw on About.com a list of 10 reasons why we should be thankful for a child with special needs. We all have our days where we wonder why things happen the way they do, wonder if there are ways out there for situations to get better. About.com gives us 10 reasons, some silly some emotional, why we should be thankful for our special needs children. 1. You never have to worry about worrying over nothing. Let other parents obsess over the frivolous and the shallow. Your child will make sure you always have something worthy to worry about. 2. Developmental delays = more years of hugs, kisses, and little-kid sweetness. My 13-year-old still wants to sit in my lap, give me hugs, and tell me he loves me. What mom of a sullen teen doesn't secretly wish for the same? 3. Maybe someday, Ty Pennington will come build you a house. Hey, Extreme Makeover: Home Edition loves families of children with special needs. Your little one may be your ticket to a lavish living space. (Are they still on??) 4. Any little milestone is a cause to throw a party. Your child works hard for every step, sit-up and syllable, giving you lots to be excited about. 5. Every day is a learning experience. Some days it's a pop quiz, some days it's a crash course, but life with your child is always an education, for sure. 6. You have the privilege of putting several doctors' children through college. After paying for all those appointments, you may feel like a one-family scholarship foundation. Put your child's name on some letterhead and take pride. 7. You meet a better class of parent in waiting rooms and support groups. Your child frees you from having to hang out with those snotty parents on the playground, and gives you entry into an exclusive club of people who are sensitive and sure of their priorities. 8. You have an iron-clad escape excuse for any occasion. You'd love to stay at that boring party, crowded event, endless church service, but, you know, your child just can't tolerate it. (And if sometimes it's you who can't tolerate it -- who's to know?) 9. Coming up with new strategies every day keeps your brain sharp. They say doing crossword puzzles helps ward off Alzheimer's. Figuring out your child's schedules and treatments and lessons and rights and restrictions must easily provide twice the protection. 10. Your blessings will always be fully counted. Other parents may take the gifts that their children bring for granted. Not you. Not ever.
An emotional rollarcoaster ride with this story. Conjoined twins reach their teenage years : amazing.
Sunday, November 3, 2013
summer day camp in her backyard for children with intellectual disabilities, focusing on what they CAN DO, not what they cannot do. July 19-20, 1968: the First International Special Olympics Summer Games held in Chicago, Illinois. February 5-11, 1977 saw the First International Special Olympics Winter Games in Steamboat Springs, Colorado. The Law Enforcement Torch Run was started in 1981 and is the movements largest grassroots fundraiser. It is a great organization to have your children join or for any adult to offer their volunteer services and help coach. So many coaches agree and will tell anyone they talk to -- they get more out of it and more back than what they give the kids. To read more, click here...
Tuesday, October 29, 2013
I was looking around at different sites and came across "About.com Autism Spectrum Disorders".
Thursday, October 24, 2013
Well, I have been busy trying to keep a handle on Will's transition to adult services. In fact, as a surprise, Will's teacher has visited several agencies that we were interested in. (See other posts on this blog for 'transition') Our state is making changes in the work program for adult services, so many agencies have stopped taking names/referrals. But off we went anyway! After seeing 4, I spoke with his teacher to see if she had any feedback on these programs since other students have moved on to these local places. She told me about a couple that she knew about and told me something I did not know -- you can divide your time between 2 facilities if you want!! Just what I wanted to hear -- we like a couple of places for different programs they offer. One was good for employment and the other had great social/community involvement. So I was able to ask his Developmental Disabuilities Case Worker to put in a request/referrral for placement with the 2. In a couple of weeks, we find out one is not taking new names so the search started again. We did find another agency and we are trying to get in there, this one has a nice community involvement. With the other one for work - we had to have our pediatrician to fill out a medical questionaire and I filled out a social history form, which the case worker forwarded to them. One day, his case worker came by to visit with many more papers to sign including SSI and Medicare. Now we wait again while they review the paperwork, assign it to a case worker on site who reviews it, then we sit for an in-take meeting. We have to figure out which agency is the primary one, to write up his Service Plan first (using his Support Level evaluation from his SIS); then the secondary one does their part. Also, we have to make sure we have transportation: one place will probably provide their own since they are close. As for the other, he may have to take a special transport bus supplied by the state. As we wait, we need to keep options open, as these may stop taking referrals. I hope that since we have gotten this far, we may be good. Service providers need to have things in place 45 days before the adult turns 21 to go. I know I started early but I thought I would rather be early and have his name there than wait. Hopefully there will not be a long time from when he gets out of school to when he starts somewhere. A few people in these agencies have agreed with me, that it is good to start early because those young adults who get to stay home for long period of time after school ends for them, have a hard time adjusting to attending adult services -- they have gotten comfortable at home with their routine, sleeping late, having mom or dad around. I don't know if he can start at the beginning of January but if he can be somewhere by the end of January, that would be great. This is still not over -- I'll keep you posted!!!
Tuesday, October 15, 2013
chiropractor's office with a variety of articles relating to autism and chiropractic care.
Friday, October 11, 2013
Quite by accident, I found a post on Head Start, An Office of the Administration for Children & Families Early Childhood Learninghere. "Ball" picture from Head Start site.
here. See information on PCAs here.
Sunday, October 6, 2013
From a post on Life News: here.
Sunday, September 29, 2013
Not too many things get me really upset or annoyed to the point where I will publically say something but... I am sure that you have all heard about some ruthless people abusing the wonderful accommodation that Disney allows families of special needs children. It is totally despicable to hear that those with means and others with no scruples or regard for families who need extra help have found a way to trudge and barge their way into a situation they do not belong in. They are lazy with no conscious and no concern for anyone else but themselves. For them, money is their power and means more than morals. The example that they set for their children is beyond reproach and how they can look themselves in the mirror or sleep is beyond me!! I hope that one of those families is reading this right now and can email me if they have a problem with what I am saying and my disgust for them. When our kids were young, we took them to Disney World several times. At the time Disney did not offer anything like that -- we did ask. So we stood in line like everyone else and WAITED and WAITED and WAITED the best we could. At times, one of us would Disability Scoop, my understanding is that Disney's new rule is a version of Fastpass: Instead of giving visitors with disabilities and their family members a card that allows them to go directly onto rides, the guests will be given a scheduled time period to return to get faster access to the attraction. In essence, guests with disabilities and their families will get to use a new version of the Fastpass tickets offered for certain rides to all guests. It is called the Disabled Assistance System and will start October 9. The change is explained in more depth here Picture from Disney website.
Wednesday, September 18, 2013
This is from an online newsletter from my chiropractor, Dr. Gibson. Our family has been going to him (starting with his predecessor) for a long time. We started taking the kids when they were small, my in-laws go, my mom went. I saw this article and thought it might be something to share. JAMA Pediatrics showing this link. Charles Bankhead of Medway says "The odds of autism increased significantly in children whose mothers gave birth with induced or augmented labor, a study of more than 600,000 births showed." The study was done over an 8 year period and looked at 625,000 babies. They were then matched with their school records and autism diagnosis. Time Magazine's online Family & Health section, August 13, 2013 states "For children who were born after induced labor, the risk of autism was 13% higher compared with that of children born to mothers who were not induced; speeding up labor was associated with a 16% higher risk of autism, while both induction and augmentation were linked to a 23% greater risk of autism in children." In the study results, the authors report "Compared with children born to mothers who received neither labor induction nor augmentation, children born to mothers who were induced and augmented, induced only, or augmented only experienced increased odds of autism after controlling for potential confounders related to socioeconomic status, maternal health, pregnancy-related events and conditions, and birth year." They concluded, "Our work suggests that induction/augmentation during childbirth is associated with increased odds of autism diagnosis in childhood." This is something you may want to check for yourself. Medpage Today Time Magazine online Easton Chiropratic Picture from Easton Pond Chiropractic site.
Monday, September 16, 2013
After writing the story about Milo and Michael, it reminded me of the time I decided to try to have Will meet Ming Tsai. Will loves watching cooking shows - 'Lidia's Italian Kitchen', 'Nick Stellino', 'Simply Ming'. Will was watching one show and getting the biggest charge out of Ming and his mom, who sometimes appears on the show. So since they are somewhat close, I decided to try and see about going up there. His restaurant is 'The Blue Ginger'. I emailed the restaurant and was surprised to hear back within 48 hours from his assistant. She said it would be great to have Will come up. So we started going back and forth a few times and finally came up with a date. You would have thought Will was the celebrity that night. When we got there, they called him by name and took us to our table. A couple of the hostesses came over and talked to us for awhile. Ming was there but was busy with other people but after about 10 minutes, came over to us. At first Will didn't seem to care or didn't recognize him, we're not sure. Ming saw one of his cookbooks nearby, got it and put it up near his own face -- Will's eyes lit up and a big smile!!! We talked more and I told Ming Will likes to collect cookbooks so Ming autographed that one and gave it to him.
According to disability scoop, when Riley, 8, was out with his family eating and was getting a little rowdy, mom knew people were getting a little annoyed. Apparently Riley, who is non-verbal, has been acting up on public outings lately. It so happened that the waitress then came over to tell the family that another family had paid their dinner bill and left them at note: “God only gives special children to special people,” read the message. As mom put it, “To have someone do that small act towards us shows that some people absolutely understand what we are going through and how hard it is to face the public sometimes. Little did he know what struggles we had been facing lately and this was surely needed at that moment.”
Sunday, September 15, 2013
I was reading the Sunday paper and found a small write-up on an event at one of our beaches -- a surfing camp held by Surfers Healing.Surfers Healing was founded by Israel & Danielle Paskowitz for their son Isiah, who was diagnosed with autism at age 3. Israel was a competitive surfer and owns Paskowitz Surf Camp. The post says the ocean was the one place that Izzy seemed to find respite. The organization teaches autistic children to surf.
Friday, September 13, 2013
The past few weeks, I have been calling local adult service providers to see which ones may be taking new clients in the next few months. As it stands, our state government is revamping the work system with these agencies. Some are allowing people to visit and others are not. So Will & I started our visits and saw 4 places. One agency let us come in to talk and get a tour but thought they were not taking names for a few months (Will does not leave school till December anyway). The other 3 were open to new clients. Note -- when you start this process, take your son or daughter with you. It is good to see their reactions, watch them to see if they are interested in anything, if they take note of any activity they see. Let the staff & current clients there interact with them. Ask your questions (see previous post regarding questions for service providers). Your questions should be answered and nothing should be rushed. You should even have time to sit and talk to the person in charge of intake. If the person is real good, they will even provide you with information you have not even thought of yet. They may know about other programs in other agencies and how they are the same or different - if not ask!! Make sure people ask about your young adult and what he or she has strengths in or weaknesses, what do YOU want your child to get out of the program. Ask if he or she can spend a trial day there. If at all possible, have your letter from the state which shows the level of service components that your son or daughter will be getting - based on the SIS eval that was done. Back to the visits -- we had 3 great ones, learning lots about each from some very nice people. Though Will was more interested in getting home, I did find him peeking at a few things in each place - wandering away to look. Anyway, when we got home, I typed out the 3 places we saw on his iPad. Our visits took place on different days, so when I read the names to him I mentioned something different about each place (NOTHING to do with activities or person we spoke to). One - the place we went to with your brother; two - the place that had 2 buildings; three - the place we went to today. I asked him if he liked any of these places -- yes. Point to one you like - he did; do you like another - yes. Point - he pointed to a second one. Then I did it again the next day, writing the names in different order. Same result. In actuality, these were the places I liked as well and thought would be a good fit. I had not mentioned anything to Will about these either. I also spoke with his teacher to see if she had any thoughts on these and she was in agreement with me about why I chose the 2 I did. Why? I liked the social activities at one because they had similar ones to school and a wonderful 'chill out' room when people get overwhelmed or frustrated (I want a room like this in my house). The other agency had a work program also similar to school that will be expanded on into the community - so I thought it would be a good transition for him. His teacher is the one who told me you can split services between 2 places!! So now we TRY to get into one for social activities and one for work. BUT ARE WE DONE?? NO!! GUESS - MORE PAPERWORK!!! So now the next phase... I will keep you posted.
Monday, September 9, 2013
I received a notification from the Google+ community of 'Special Needs Clothing' (which shows some nice things) showing a pair of shorts with an elastic band top. Of course, Will has been wearing this type of shorts and pants FOREVER since it is the easiest thing for him to put on and get off (his finger dexterity is not good for buttons and zippers). In fact, this type of pant almost caused a fury in his old junior high school years ago -- apparently there were incidents of kids being 'pants'. So the school was outlawing elasticized pants and shorts. My letter to the principal wanted to notify him that for Will, or anyone in our group who can't handle anything else but this type of clothing, it would be more of an incident to have an aide spotted in the bathroom with hands on the child's zipper; though knowing the staff, it would be innocent as they would be helping the child with their clothing using the toilet. BUT how would it look??!! Anyway our group was left out of this ruling. OPPS!! Sorry for wandering off my initial conversation!! The best shoes that Will has worn have been a couple of stylesLock Laces'. They are elastic, bungee laces, no tie. Previous post called 'Helpful Shoe Laces' gave reasons why it might be a help for those with medical issues.
Sunday, September 8, 2013
I was watching the Today Show, when I thought I might head out the door to run an errand. I left the TV on while I got my keys and wallet -- so glad I did!!. I was able to watch a video and listen to this story (through a few tears I must admit). Jordan Somer, a young lady from Nebraska, started this pageant when she was 13 years old for young ladies in the area who have disabilities. "It isn’t about who has the best voice or the prettiest dress. here.
Wednesday, September 4, 2013
Monday, August 26, 2013
Friday, August 23, 2013
Monday, August 19, 2013
This is Will.
Friday, August 9, 2013
Thank a Special Needs teacher when you see one. I was looking around for videos and came across this one which follows a high school Special Needs teacher in Maryland. Watching this reminds me of Will's teachers and what they do when it comes to academics and community outreach. Will's group goes out every semester to work one day a week in a local business as well as going on trips to the library, going shopping for supplies for their store in their classroom, field trips to interesting events, etc. Their store sells drinks and snacks, so they inventory their goods before shopping. They come back and price and stock the goods. The kids have to interact with the teachers that come in to buy - hand things to them, use the register and make change if needed. Recycling, delivering the newspapers to teachers, and help with copies is what they are responsible for as well. This You Tube video is great and should make all of us give those special ed teachers in our life, or someone you know, a great big pat on the back and 'thank you'.
Tuesday, August 6, 2013
Overdrive' and am reading in front of them trying to get them to read with electronics. 'That's nice' I hear. I am wandering off the path I want to go on. What I started telling folks (from the yard sale) is what I use to do with them when they were tired of the books. Keep the imagination going. Two boys being verbal and one not, what we did was make up our own stories. One of us would start (it was usually a spooky story - they still are boys). That person would take the story to a certain point and then point to another person and the story would continue. So what about Will you're probably thinking. He was our sound effects guy!! Someone would have a character look out a window, go down or up stairs, open a door -- whatever; "and then.....????". Will would make a sound and another person would take over building on that sound. They really had a good time and Will did have a repertoire of sounds to contribute!! Sometimes he would make a sound that didn't seem to fit so the next person could get creative, pretending it's a dream or listening to a radio. They really got into it. See if your kids might want to try it too!!
Department of Rehabilitative Services:
Updating the family calender, I am reminded of Will's IEP/transition meeting coming up in January. Seeing that, I have to go through his file of 'stuff' I have already started to apply for and/or need to update - to bring with me so I can find out what the next steps will be. He leaves school this next December - on to bigger and better things.
I find in the handouts from the transition seminar, information on our Office of Rehabilitative Services (ORS). The national website is under the Department of Education. The office offers career planning for students with disabilities, they help prepare eligible people to prepare for and obtain employment. Each person is assigned a Vocational Rehabilitation (VR) counselor who helps the individual and his/her family to make good choices in their planning.
The VR counselor offers assistance in a variety of ways: *providing career information
*assisting in choosing employment goals, services, and training
*develops an Individualized Plan for Employment (IPE)
*provides information on programs and services for transitioning
*helps with guidance and counseling
*vocational assessment & community job trials
You need to apply to ORS. Ask your child's teacher who from ORS is assigned to your school and a parent or guardian MUST attend the meeting if the child is under 18 years old. If the counselor determines that a vocational assessment is needed, arrangements may be made through school and done during school hours. The results will be shared with family, school personnel, an evaluation team and the counselor - all can help the student develop career goals.
ORS may even help pay for post-secondary training, certification, license, or college degree, books, supplies, specialized tools - you get the picture. It may even go as far as helping to pay for bus transportation and gas. Assistive technology can possibly be included or software if needed for a computer to complete assignments.
ORS offers a lot of help and direction for those getting ready to transition out into the work world. Make sure you contact your local office or school for any information you may need.
Three Cheers for Michael Garcia!!!
(Milo's picture from 'Today Moms' website)
I came across a story on "Today Moms" about a waiter in a restaurant in Texas who defended a 5 year old boy with Downs Syndrome. Milo was at the restaurant with his family, who are regulars, and was showing off his new words and telling Michael Garcia, the waiter, about his birthday. At another table nearby was another family who are also regulars. They asked to move away from Milo's family and a man sitting there said 'special needs children need to be special somewhere else'. To which Michael replied 'I am not going to be able to serve you Sir.' YES!! Good for you!!! More people should be like you Michael.
Michael was afraid he would lose his job but more people have been turning up at the restaurant to shake his hand. There have been lots of postings on the restaurant's Facebook page. The family has been going there for so long, Milo and Michael even have a special way of going to their table when the family arrives -- Michael always carried Milo.
As many other families, they have had their share of stares and parents pulling their children away from Milo when out, like on a playground. We too had something similar happen when Will was young. He was about 4 and we went to a family type of restaurant, sat down next to a party of 4-5. Will, who is autistic, is non-verbal and back then had no way to communicate except to make a noise (AH-AH or similar) when he wanted something. A woman at that table told us we should leave him at home and that she too had special needs children and they would never act that way when out. My mother got on her 'grandmother high horse' and told that woman if she didn't like the noise, feel free to move to another table on the other side of the restaurant - her grandson is fine and that's the only way he can express himself whether she liked it or not!! The wait staff kept on serving us and was attentive to Will. We're going back probably 16 years ago, so keep doing what they were doing was probably comparable to a member of the waitstaff standing up to a customer.
They stayed put but were not happy and the evil looks continued.
We can only hope that this ignorance will someday disappear. As Milo's mom puts it “Maybe next time they’ll think twice before they utter those words or say something derogatory about somebody else.”
I attended an iPad workshop that Will's teacher had told me about. It was given by a local company, Tech Access, that evaluates and gives special needs students communication devices to use while in school and to take home during this time as well. There were only a few of us there but this seems to be a useful tool for those specializing in Speech Therapy and are teacher assistants working with special needs students (one other person was a parent).
While the instructor went over all the basics of how to set it, use it, make folders, delete icons, etc., we did touch upon some apps that are good for special needs. Going through the App Store can take time - as he said - you really have to be specific or you get thousands of results. There are free apps and those with a small fee, as well as those that can cost upwards to $200.00 (US dollars). The program we use for Willie is called 'Assistive Chat' which I think was about $35.oo US dollars. Others at the workshop were using 'Proloquo2Go' which runs about $200.00 It depends on what your child can do -- "Assistive Chat" is more for someone who can type and knows words; Prologuo has pictures that you can use along with words. One way to help with this dilemma is to go to AppShopper. This is NOT connected to Apple. There you will find a lot of apps for iPads and iPhones as well as Macs, along with their price changes (if applicable), new apps, app updates. Check it out - great site!! One drawback, even on the 'iTunes store', is that the majority of apps are for younger children, not high school. Even though he does work like a younger student, the pictures and manner of presentation is too young for him. So if you have a pre-schooler or elementary aged child -- you are good to go!!
One good one for those who like to 'see' the results of an action -- 'Songify'. Speak or breath into your Android device and the app will turn the action into a song.
Also, he mentioned a website called 'Moms with Apps'. While this site will include all sorts of apps for all varieties of skills and needs, it also invites app developers to share their programs -- see "App Friday". I checked out 'App Resources for Special Needs', went to 'Mashable article on iPads and disabilities' and not only found apps for children but a couple of them for seniors: one memory practice one that was created by someone who's mom has Alzheimer's and two for medication reminders (though one was NOT available in the US store). You can check out a previous post regarding 'Tech Items for Seniors' that had ideas from 'Senior Savvy' regarding the same.
Of course YouTube has everything!!! The instructor was talking about different types of a stylus pen for people who cannot type and have a hard time holding onto a pen - type device. Of course you can buy one but you can also make your own. Check out a variety of YouTube videos to make one. TechAccess also has instructions.
Spend some time in the 'iTunes store' and the 'AppShopper'. Check with your child's teacher and speech therapist so see what will be good. Find a workshop in your area. Time well spent!
Will's New iPad for Communicating.
We picked up an iPad for Will this weekend and downloaded 'Assistive Chat' for him as his communication program. There were 3 choices for a voice output, so I played each for him and let him choose - one was male, one female and one 'mechanical' for lack of a better word: Ryan, Kenny and Heather. He chose Ryan.
There were choices for the voice output to 'speak' every letter, word or sentence when done - we chose the latter. As a person types, there are predictive words that come up, so you really do not need to spell the entire word - just tap the appropriate tab.
As per usual, Will has attempted NOT to use it - this is his usual M.O. When something is new, he puts off using it, especially when he feels there is no need. "Mom knows what I am talking about!", I am sure this goes through his head - which I do but a lot of people who don't know Will's version of sign, have no clue what he is saying and THIS is what he needs to be prepared for.
I think once he gets to school and can see the other ones that are being used, he'll get into it. He is also more apt to follow his teacher's constant request to use it, rather than ours.
Getting Excited About Communicating the 'i' Way.
Today we had our transition meeting regarding how things stand for Will - what we need to do, who we need to contact, etc., since he will be done with school in December of this year. It seems we are on-track, no additional school testing needs to be done, unless some social service agency needs it. Right now, we wait to hear from one agency; we are not sure if we need it since he has been given a case worker at another one similar in mission. Vocational assessment will probably be done in the summer.
Anyway - I spoke with his teacher and asked about an iPad for Will to use instead of his current communication device. (See older post - "Communication Devices"). She was all for it; he had experimented with another student's a short time ago and Kerry said it went well - he learned it quickly and handled the touch screen keyboard nicely. So we will be getting one soon.
(picture of Will's teacher's book)
Kerry also gave me a book to look at in the meantime. I figured we would be going with the app "Assistive Chat" but "Sentence & Question Builder" looked good too, maybe a nice sister app. The book she gave me is called "Apps for Autism" by Lois Jean Brady M.A.,CCC-SLP, , 2011 by Future Horizons. You buy the apps from the 'iTunes' store. The book has over 200 apps that help improve communication, behavior, social skills, etc.
The book covers A LOT of information. Lois discusses how technology is changing so fast. As she puts it: 'New mobile technologies for people with autism are creating new opportunities at an exponential rate. The message is that we can create tools that can make profound differences in the trajectory of people's lives and in education in general'. 'Thank you Apple! Finally, devices that support communication, scheduling, academics, social interactions, video modeling, and leisure time are wrapped up in hand-held, super, cool packages. Individuals who cannot use a mouse or keyboard can use the iPad, iPhone, and iPod touch because there is no disconnect between the screen and the keyboard/mouse.' As she also states, there is a big difference in price between the older communication devices (which can run $8 - 10,000 dollars and take months to come in after ordering) and the new Apple products that run more or less around $500 and have apps that you download and use right away. Yes - there may be a charge for some apps, some are FREE. Still, it's a whole lot LESS money. I would suggest you speak with your child's teacher and speech/language person to discuss good options.
I AM NOT PROMOTING ONE DEVICE OVER ANOTHER. JUST SHARING WHAT I AM READING AND OBSERVATIONS AND WHAT I AM THINKING!!!!!!
I just want to mention some of the categories in the book and some of the apps. The book gives current app prices (prices may change over time) and gives website addresses for each app so you can look it up. I checked out a few. One I could not find, nothing came up, but the others looked great.
There are 12 categories in the book, each with plenty of apps to choose from. I'll just list a few -- apps to get the word(s) out; sign language; articulation; concept development; hygiene & pre-vocational; graphic organizers & visual supports. Apps are: autism shapes, small talk letters, numbers, colors; idress for weather; uzu; body language; is that glutten free?.
I highly suggest you try to find the book ($29.95 US if you want to buy it). I think Kerry said you can find all the apps on the iTunes store if you have an account and they constantly add more. I can't wait to try Will's!!! Our work is set out for us this weekend. I would love to hear from anyone out there using these already - give me/us your feedback -- please!!!!!
Robots help kids with autism.
Robots Help Children with Autism:Now Dancing Robots to Teach Autistic KidsRobots'>http://www.msnbc.msn.com/id/41967936/ns/health-mental_health/t/robot-teaches-autistic-kids-interact/">Robots Teach Autistic Kids to InteractRobot'>http://www.huffingtonpost.com/2011/03/09/robot-helps-autistic-kids_n_833321.html">Robot Helps Autistic Kids
Transition and work
As I continue to do the paperwork and contact the appropriate agencies for help, I am also looking at agencies that help find work. There are several. There are companies that hire people with disabilities; my list is for those looking for something else.
I also think of an agency that interviews the person, their family and friends to see what he/she might be interested in doing on their own. I like that idea. This started me thinking, my husband would say 'look out' or 'I could smell that smoke', about possible types of jobs that could be considered a business that they could do, work from home or a family business. I understand they cannot make a lot of money due to SSI regulations so it would be part-time/on a small scale. These can also be done using a mentor. There are agencies that have folks who want to mentor a challenged child/adult or use a Best Buddies person.
Here are some possibilities - just ideas I toss around in my head especially after I leave a place or talk to someone who owns a business:
*bake cookies or cakes to sell to friends or family (this one came up during a seminar - someone's son was doing it and loved it);
*walk a dog/take care of a pet for neighbors or family;
*work with a local small business -- we go to a local car repair business, I think a small 'stand' could be set up selling coffee and snacks, on a Saturday for instance. After visiting mom at the nursing home and hospital, how about working with a local gift shop setting up a place on the weekends selling some items or take some items from the hospital gift shop around to some floors and help sell. The young businessman or woman keeps a percentage of what they sell. At nursing homes, they can sell on weekends or family nights;
*collect scrap metal, cans and/or bottles and sell them. They would be helping the environment as well;
*if they are artistic do some art work and place it in local businesses;
**this one I had started trying to work out a plan to do for Will and maybe a few others in his group (or for his work group in school) but due to family illnesses and my work gearing up I did not get far. I still think it is viable. The idea came from my mother actually -- she was commenting on how she has a hard time getting to the cemetery to put flowers on family graves. So what about a business where people can go for them? They advertise in churches, funeral homes; they charge a straight fee to order either fresh or artificial flowers or a flag; who goes can clean the stone a bit and maybe say a prayer. Take a picture to show their client what it looks like.